Monday, January 4, 2016

A Little Like This - Or That?

I was diagnosed with Stage 4 Endometriosis on September 16, 2015

I need to back up a bit to explain how this came about.  But, this date right here, it's the anchoring point in my life right now.  I'll get around to it, the backing up a bit and explaining.  Just not in this specif post.  So, bare with me here. I'm about to rant.


1) "Oh, I know lots of people with Endometriosis."

2) "You're just going to get a hysterectomy, right?  That's how it gets cured."


3) "What in the hell is that?"




1) I'm not a big fan of trivializing endometriosis.  I don't know maybe I'm taking it personal.  Possibly, but, I don't like the trivialization of any situation.  Every single one is independent and different from the other.  


2) Nope, I'm not getting my lady bits ripped out.  And, no, that's not how it's "cured".  Actually, it cannot be cured.  I'll always have it.

3) Hey now, that's a fabulous question!  This is what the Mayo Clinic says
"Endometriosis (en-doe-me-tree-O-sis) is an often painful disorder in which tissue that normally lines the inside of your uterus — the endometrium — grows outside your uterus (endometrial implant). Endometriosis most commonly involves your ovaries, bowel or the tissue lining your pelvis. Rarely, endometrial tissue may spread beyond your pelvic region.
In endometriosis, displaced endometrial tissue continues to act as it normally would — it thickens, breaks down and bleeds with each menstrual cycle. Because this displaced tissue has no way to exit your body, it becomes trapped. When endometriosis involves the ovaries, cysts called endometriomas may form. Surrounding tissue can become irritated, eventually developing scar tissue and adhesions — abnormal tissue that binds organs together.
Endometriosis can cause pain — sometimes severe — especially during your period. Fertility problems also may develop. Fortunately, effective treatments are available."


The best was to sum up what it feels like is this image:




I am currently going through treatment.  I'm two months into a six month chemotherapy plan.  I have a hard time saying that, sharing that, because I don't have cancer.  

It's not all gloom & doom, though.  There have been some positives, like:
1) I can walk more than a block without the aid of a walking stick
2) I can sit and not be in pain

And, yes, my endometriosis was contributing to me not being able to walk or sit.

So, I'll be sharing a bit more here about my endometirosis, my diagnosis, my treatment and what I'm learning along the way.  * (which, so far, has been a lot) *
So, thanks for stopping on by and checking this post out.

3 comments:

  1. I've heard about this pain. And I'm sorry you have to deal with it. Ugh. Ugh. Ugh.

    How are you doing with chemo side effects? I hope they are not wreaking havoc on you and that at the end of months the amount of pain you are in is greatly reduces, and even completely gone. Thinking of you. xoxo

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    Replies
    1. The first month was pretty bad. I don't do well with medication, I have pretty much every side effect listed. SO - the first month was a lot of documentation so that I could be better prepared for this month (and the remaining ones). So far, so good on this second go through. I'm a little better prepared. I've also given up a lot of obligations and commitments. This has helped me to be able to decline things that come up a little easier.
      The end of the month does tapper, which is awesome, but it's short lived.
      Thank you for keeping me in your thoughts! xoxo

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    2. Glad the end of the month is better.
      Chemo sucks. Let me know if I can help with anything xoxo

      Delete

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